www.rarerenal.org is developing invaluable information on a whole list of uncommon renal disorders, mostly genetic. It is also the entry point to UK Rare Renal Disease Registers.í Its pages collate info and links to external info sources of which some key C/C+ ones (in case your disease isn’t there yet) are:
- GeneReviews (NCBI)
- OMIM (NCBI)
With all these links, you can spend as long as you like on each disease.
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